PATIENT AND CAREPARTNER EDUCATION: 

  • Creating a Team to Manage Mental Health Issues for People Living with Parkinson’s. The Parkinson Council hosts Dr. Amy Colcher, MD, Director of Movement Disorders Center, Cooper Neurological and Corlynn Hullfish, LCSW, Cooper Neurological Institute to provide info/tips/tools on how to prepare, what to expect, and what to do to manage aspects of non-motor symptoms associated with Parkinson’s disease. (Recorded 9.16.2020). Click on the link to access the recorded presentation: https://us02web.zoom.us/recording/detail?meeting_id=0X0YR6iRRxqlkktqnW1r2Q%3D%3D
  • Taking Responsibility: A dialogue with adult children of people with Parkinson’s, the caregiver experience, and keys to self-care. Facilitated by Patty Davis, MSW, LCS,W and Senior Social Worker at SOWN with Suzanne Reichwein, MSW, Manager of Research and Clinical Programs at the Parkinson’s Disease and Movement Disorders Center, Penn Medicine. (Recorded 6.9.2020) Click on the link to access the recorded presentation: https://us02web.zoom.us/recording/detail?meeting_id=VAJ4WDFzTmelYv8IlpMnUQ%3D%3D 
  • Telemedicine: Engaging in Clinical Shared Decision-Making, presented Dr. Stuart Isaacson, Associate Professor of Neurology at the Florida International University Herbert Wertheim College of Medicine in Miami, Florida, and Director of the Parkinson’s Disease and Movement Disorders Center of Boca Raton in Florida (Recorded 5.12.2020). Click the link to access the recorded presentation: https://us02web.zoom.us/recording/detail?meeting_id=vxtVjHiCR%2FKLyJ6C%2Fp40Zw%3D%3D
  • Mini-Symposium with Parkinson’s Experts from the Greater Philadelphia Region, featuring Dr. Andrew Siderowf, Pennsylvania Hospital Parkinson’s Disease & Movement Disorders Center Director; Dr. Lorraine lacovitti, Professor of Neuroscience, Thomas Jefferson University; Patricia E. Davis, MSW. LCSW. Senior Social Worker at SOWN; and Heather Cianci, PT, MS, GCS, Penn Therapy & Fitness’ Dan Aaron Parkinson’s Rehab Center at Pennsylvania Hospital (Recorded 4.29.2020). Click the link to access the recorded presentation: https://www.dropbox.com/s/gwzkanmq86qmwez/April%2029%2C%202020%20Virtual%20Mini-Symposium_The%20Parkinson%20Council.mp4?dl=0

CAREPARTNER RESOURCES:

  • Support
    • Telephone Workshop Series for Care-Partners of people with Parkinson’s- contact: Patty Davis- pattydavis@sown.org, 215-487-3000 ex 25
  • Advocacy
    • CARIE: 215-545-5728
    • Community Legal Services-Philadelphia: 215-981-3700
    • Senior Law-Philadelphia: 215-988-1242; Bucks/Montgomery County: 610-910-0210; Delaware/Chester 610-910-0215
  • Mental Health
    • NAMI-National Association on Mental Illness- nami.org, Suicide Hotline 1-800-273-825 or text 741741, Warm line to chat -211
  • Resources to lift your Mood
    • com- virtual tours of the Vatican including the Sistine chapel, the Louvre, Metropolitan Museum of Art, The Getty Museum
    • com-virtual train rides around the world (not just for kids)
    • Metropolitan Opera streaming –Free streaming on Facebook
    • com-Ted Talks
    • Virtual Nature tours- Longwood Gardens, the Wissahickon, Train Rides Around the World-kidactivitiesblog.com

MOVEMENT AND EXERCISE:

Dance for PD

    • Local Instructors Judith Sachs and Marion Hamermesh are holding Virtual Dance for PD Meetings via Zoom on Tuesday’s at 2pm. To join the meeting, go to the following link:
      https://us02web.zoom.us/j/695355761

      Meeting ID: 695 355 761
      Password: DanceClass

Functional Fitness:

    • Every hour walk to each room of your home
    • Get up and move during every commercial or every 20 minutes
    • Stand/walk while on the phone
    • Perform knee bends while waiting for microwave or coffee
    • If you need to go upstairs to get or so something – go up and down the stairs 2x before completing your task 
    • Dance and Sing
    • Get outside
    • Streaming exercise videos
    • Exercise video games

 Yoga

Zoom Workouts

    • Contact Stacey Macaluso for information about remote Rock Steady Boxing, Dance for PD, Yoga and other classes at Stacmaca22@gmail.com.