PATIENT AND CAREPARTNER EDUCATION:
- “Creating Calm, Community Connections.” Feeling a little wary (or weary) about navigating all the happenings in your life? Then spend an hour with our experts Lauren Zelouf from the University of Pennsylvania, Dance for PD instructors Sharon Friedler and Jon Sherman, and Dance for PD co-founding dancer, David Leventhal designed this workshop to share info and resources on managing anxiety, stress, mood, and social isolation with music, movement, and social engagement tools that create new bonds. And, of course, there’s a Dance for PD demonstration! (Recorded 5.12.2022). Click the following link to access the recorded presentation: https://vimeo.com/709168890
- “Gadgets, Gizmos, and Garments: How Everyday Tech Tools and Wearable (And Fashionable) Designs Make Life Easier.” Dr. Martha Hall from the University of Delaware, High School Junior Sajin Agarwala, and Dr. Meredith Spindler from Penn’s Parkinson’s disease and Movement Disorders Center share what’s happening in fashion, home tech, and gadgets research designed to make daily life better. (Recorded 11.17.2021). Click the following link to access the recorded presentation: https://vimeo.com/647147422
- “Why Am I Always Tired?” Ian Walker, MD, and Julia Wood, MOT, OTR/L, discuss fatigue and sleep disorders with Parkinson’s and what you can do to combat this typical non-motor symptom of Parkinson’s. They will also share how pain in Parkinson’s can interrupt and limit restful sleep. (Recorded 6.23.2021). Click the following link to access the recorded presentation: https://vimeo.com/566750522
- Find Your Balance. Dr. Diane Reibel, Director of the Myrna Brind Center for Mindfulness at the Marcus Institute of Integrative Health- Jefferson Health, and Clinical Associate Professor in the Department of Integrative Medicine and Nutritional Sciences and Theresa Conroy, C-IAYT, Yoga Therapist of Yoga for Parkinson’s, teamed up to present online education on how to practice mindfulness, meditation and yoga to manage stress. The engaging discussion between two experienced and highly respected professionals in the field of mindfulness and yoga therapy includes a mini-workshop to help you practice at home. (Recorded 3.1.2021) Click on following the link to access the recorded presentation: https://vimeo.com/518381922
- Making the Most of the Holiday Season. Lance M. Wilson, MSS, LSW, C-SWHC, Social Worker/Education and Outreach Coordinator, Jefferson Health Comprehensive Parkinson’s Disease and Movement Disorders Center and Suzanne Reichwein, Manager of Research and Clinical Programs, University of Pennsylvania, Parkinson’s Disease and Movement Disorders Program shared their time and talent on this “seasonal” and timely topic. (Recorded 11.18.2020). Click on following the link to access the recorded presentation: https://vimeo.com/481445666
- Creating a Team to Manage Mental Health Issues for People Living with Parkinson’s. The Parkinson Council hosts Dr. Amy Colcher, MD, Director of Movement Disorders Center, Cooper Neurological and Corlynn Hullfish, LCSW, Cooper Neurological Institute to provide info/tips/tools on how to prepare, what to expect, and what to do to manage aspects of non-motor symptoms associated with Parkinson’s disease. (Recorded 9.16.2020). Click on the link to access the recorded presentation: https://vimeo.com/518292611
- Taking Responsibility: A dialogue with adult children of people with Parkinson’s, the caregiver experience, and keys to self-care. Facilitated by Patty Davis, MSW, LCS, W, and Senior Social Worker at SOWN with Suzanne Reichwein, MSW, Manager of Research and Clinical Programs at the Parkinson’s Disease and Movement Disorders Center, Penn Medicine. (Recorded 6.9.2020) Click on the link to the recorded presentation: https://vimeo.com/522540665
- Mini-Symposium with Parkinson’s Experts from the Greater Philadelphia Region, featuring Dr. Andrew Siderowf, Pennsylvania Hospital Parkinson’s Disease & Movement Disorders Center Director; Dr. Lorraine lacovitti, Professor of Neuroscience, Thomas Jefferson University; Patricia E. Davis, MSW. LCSW. Senior Social Worker at SOWN; and Heather Cianci, PT, MS, GCS, Penn Therapy & Fitness’ Dan Aaron Parkinson’s Rehab Center at Pennsylvania Hospital (Recorded 4.29.2020). Click the link to access the recorded presentation: https://vimeo.com/522879544
Living Well at Home Series
Part IX
July 5, 2022-September 2, 2022
A series of programs to keep the PD community connected.
Mondays 11:00am-12:00pm Support Group
Join Zoom Meeting
https://us06web.zoom.us/j/5874950878?pwd=dkpNbWdRVGk4K01RZHJtTXQwaFVtUT09
A different group meeting will be held each week.
- Newly Diagnosed 7/18,8/15
- Living Well with PD 7/25, 8/22
- Women’s Group 7/11, 8/8
- DBS 8/1
Tuesdays 11:00am-12:00pm Breathe, Balance and Gait with Judith Sachs
“Learn to balance, seated and standing, and feel secure as you breathe, shift weight and experiment safely with movement in all directions. This class will help you align your body and mind for better balance, then take you across the floor with a variety of options for slow, quick, turning, and pivoting gait. You can take class in the chair and still benefit. Bring a tennis ball and a Kleenex box or water bottle (any object about 8”high) and learn to redefine what it means to take a breath and stand on your own two feet.”
https://us02web.zoom.us/j/81966575515
Meeting ID: 819 6657 5515
One tap mobile +16465588656,,81966575515# US (New York)
Thursdays 11:00am-12:00 pm Fit Brains!
Join occupational therapist Julia Wood for an hour group class incorporating exercise to challenge your brain followed by cognitive fitness activities to flex your mental muscles!
https://us02web.zoom.us/j/81599579084?pwd=YnVSR0U3bjhYQnBMY0lrbW1uY29qZz09
Meeting ID: 815 9957 9084
Passcode: 763362
Fridays 11:00am-12:00pm Get Fit Friday with Melissa Bandock
Chair Yoga for PD.. This class will address stiffness, mobility, balance & breath.
https://us02web.zoom.us/j/3973353538
Education Wednesdays TBD (will be held in evening)
Back by popular demand! Stay tuned for a vote on the book.
Book Club with Julia on August 24th
Info on logging in to follow
Questions? Call Sue Reichwein 215-829-7273 or e-mail sreichwein@pennmedicine.upenn.edu
CAREPARTNER RESOURCES:
- Advocacy
- CARIE: 215-545-5728
- Community Legal Services-Philadelphia: 215-981-3700
- Senior Law-Philadelphia: 215-988-1242; Bucks/Montgomery County: 610-910-0210; Delaware/Chester 610-910-0215
- Mental Health
- NAMI-National Association on Mental Illness- nami.org, Suicide Hotline 1-800-273-825 or text 741741, Warm line to chat -211
- Resources to lift your Mood
- Virtual tours of the Vatican including the Sistine chapel, the Louvre, Metropolitan Museum of Art, The Getty Museum at https://www.travelandleisure.com/attractions/museums-galleries/museums-with-virtual-tours
- Virtual train rides around the world (not just for kids) at https://www.travelandleisure.com/trip-ideas/bus-train/virtual-train-rides
- Metropolitan Opera streaming on demand at https://www.metopera.org/season/on-demand/
- Ted Talks at https://www.ted.com/talks
- Virtual Garden tours at https://www.gardensillustrated.com/gardens/gardens-to-visit/virtual-garden-tours-best/
- MEDITATION, MOVEMENT AND EXERCISE:
Mindfulness and Meditation
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- The Marcus Institute of Integrative Health at Jefferson Health Systems provides 15-Minute Zoom Mindfulness Practice Sessions, every Tuesday & Thursday, 12:30pm to 12:45pm. You can join via Zoom: https://Jefferson.zoom.us/j/95409363161 or by phone: +1 646 876 9923 US. Meeting ID: 954 0936 3161
Dance for PD
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- Local Instructors Judith Sachs and Marion Hamermesh are holding Virtual Dance for PD Meetings via Zoom on Tuesday’s at 2pm. To join the meeting, go to the following link:
https://us02web.zoom.us/j/695355761Meeting ID: 695 355 761
Password: DanceClass
- Dance for PD co-founding teacher David Leventhal is also holding Virtual Dance for PD classes. Click the following link for a schedule of classes, dates, and times: https://danceforparkinsons.org/resources/dance-at-home
- Local Instructors Judith Sachs and Marion Hamermesh are holding Virtual Dance for PD Meetings via Zoom on Tuesday’s at 2pm. To join the meeting, go to the following link:
Music and Voice
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- ParkinSingers – ZOOM REHEARSALS every Monday from 4 – 5:30 PM for sing-along songs and exercises tailored to strengthen the voices of people with Parkinson’s. https://www.parkinsingers.org
Exercise
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- Fitness Friday with Parkinson Foundation with instructor Joellyn Fox: https://www.parkinson.org/understanding-parkinsons/coronavirus/PD-health-at-home/Fitness-Fridays
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- LSVT BIG and LOUD on-line: https://blog.lsvtglobal.com/lsvt-resources-for-people-with-pd/
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- PMD Alliance Exercise and Education: https://www.pmdalliance.org/about/neurolife-online/
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- Brian Grant Foundation Exercise: https://briangrant.org/exercise-videos/
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- American Heart Association Exercise Guidelines: https://www.heart.org/en/healthy-living/fitness/fitness-basics/aha-recs-for-physical-activity-in-adults
Functional Fitness:
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- Every hour walk to each room of your home
- Get up and move during every commercial or every 20 minutes
- Stand/walk while on the phone
- Perform knee bends while waiting for microwave or coffee
- If you need to go upstairs to get or so something – go up and down the stairs 2x before completing your task
- Dance and Sing
- Get outside
- Streaming exercise videos
- Exercise video games